Meet the 6 year old born with her heart outside her chest | This Is Miss Petite Nigeria Blog

Friday 30 October 2015

Meet the 6 year old born with her heart outside her chest

Six-year-old Virsaviya Borun  was born with her heart and intestines outside her chest.Virsaviya, a native of Russia who recently moved to South Florida with her mother, suffers from multiple birth defects caused by Pentalogy of Cantrell - a rare congenital condition that occurs in estimated 5.5 in one million live births.

Her intestines are also outside her body and she has no abdominal muscles or a diaphragm.
'When I was pregnant, the doctor said she will not survive, that she is going to die,' the girl's mother, Dari Borun, told NBC

But the medical team in Boston said Virsaviya cannot undergo surgery at the moment because she has high blood pressure in her pulmonary aorta.

The girl will be evaluated again in two years to determine if it would be safe for her to undergo an operation.

Ms Borun has appealed to the public for help, asking for donations to help her cover her daughter’s medical bills and basic living expenses, saying she has very limited means, being a single mother of a special-needs child, and no other family in the US.

The mother and daughter have since moved from Boston to Hollywood, Florida, because Virsaviya is unable to live in a cold climate.
Mailonline

15 comments:

  1. Wonderful God!!!

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  2. God of mercy
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  3. Dis made me cry not joking

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  4. Funmilayo Ransome Kuti, MON (25 October 1900 Abeokuta, Nigeria - 13 April 1978 Lagos, Nigeria),[1] born Francis Abigail Olufunmilayo Thomas to Daniel Olumeyuwa Thomas and Lucretia Phyllis Omoyeni Adeosolu, was a teacher, political campaigner, women's rights activist and traditional aristocrat. She served with distinction as one of the most prominent leaders of her generation. She was also the first woman in Nigeria to drive a car.

    Ransome-Kuti's political activism led to her being described as the doyen of female rights in Nigeria, as well as to her being regarded as "The Mother of Africa." Early on, she was a very powerful force advocating for the Nigerian woman's right to vote. She was described in 1947, by the West African Pilot as the "Lioness of Lisabi" for her leadership of the women of the Egba clan that she belonged to on a campaign against their arbitrary taxation. That struggle led to the abdication of the Egba high king Oba Ademola II in 1949.

    Kuti was the mother of the activists Fela Anikulapo Kuti, a musician, Beko Ransome-Kuti, a doctor, and Professor Olikoye Ransome-Kuti, a doctor and a former health minister of Nigeria.[2] She was also grandmother to musicians Seun Kuti and Femi Kuti.

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  5. Awwwww, this touched my heart. May God who gave her life pave way for the mum..!!

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